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Maddy Update and Other Stuff

So I'm interrupting the Christmas posts to give an update. Maddy went to see the endocrinologist yesterday. I was really nervous and already kind of mad about the appointment. (Basically I was prepared to tell the guy to go jump off a cliff in no uncertain terms.) Well when we got to the appointment we gave him some information we'd printed off about growth in arthrogryposis kids. Maddy had grown quite a bit lengthwise since she last saw him and was staying pretty close to the growth curve on that and her head size is on the chart still. The doctors concern with her weight in the beginning was that she would stop growing tall as well as head size after awhile but that hasn't happened, so our pediatrician is finally starting to relax about her weight a bit. Anyway, it was so weird because the endocrinologist almost acted like we were hypochondriacs for being in his office. Last time he was suggesting we make a decision about growth hormones. This time he was talking about how Maddy is so young and she has a very large window to catch up on her growth, he wants to be conservative, blah blah blah. I think what really happened was that he did some research on arthrogryposis and using growth hormones, found out that it hasn't ever been done, or at least there is no documentation about the effects growth hormones would potentially have in conjunction with arthrogryposis and got scared out of his wits about trying an experiment as he saw potential for massive law suits and personal ruin, and he back off. Anyway we may go check up with him in a year. We'll just see how Maddy is doing. She is still very tiny. Only 16 lbs, but she is almost 30 inches tall. We definitely want to keep watching her weight and trying to get her all the calories we can but for now I guess we are at an impasse on the whole weight issue.
Maddy also had her post-op check up with the ENT this week and her ears are clear and looking great. I don't know how long that will last since she developed a runny nose yesterday, but at least the tubes will drain the infection if she gets one. I hate getting the tubes in but they really are nice for not having to load her down with antibiotics all the time. She spent practically the whole month of November on antibiotics which was not fun.
In other news, our washer broke down. It couldn't handle the massive amount of after vacation + after guests laundry that I had a died after about the 6th load of laundry. Fortunately I was close to being done. We bought a front loader from Lowe's which I'm super excited about and it is supposed to be delivered tomorrow.
Other than that we are trying to enjoy our last few days of "relaxing" and gearing up to start classes. I will be teaching two sections of Freshman English at DBU this semester. I am excited but really really nervous about teaching. Right now I'm trying to work on getting a syllabus prepared.
I see that Maddy has scattered her tiny little hair rubberbands all over the floor so guess I need to stop for now and go clean up that fun mess. Have a great weekend!

Comments

bee said…
Just now catching up on blogs. The cookie decorating looks like a hit with Maddy. That was a good idea to do it on the floor using newspaper. Love the pictures of course. : )
January 7, 2011 at 9:39 PM
Drs Meyer said…
I think her putting stickers on is just super funny! And I'm really thankful that the endocrinologist has had a small change of heart - maybe the Lord is working on him since we've been praying. Hoping your classes are coming together nicely!
January 8, 2011 at 2:42 PM
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