Well we got back a couple of hours ago from PT/OT. We have an new OT now named Coraley because our OT Tiffany had her baby yesterday. I really like Tiffany and will miss her. Coraley seems nice but I am reserving judgment about whether she is a good OT or not.
Our challenge right now---well okay one of our challenges---is tummy time. Maddy is having a really hard time getting on her tummy and lifting her head. I don't think I've written much about her neck but she has torticollis which is a greek word (I think) that means "twisted neck". So as I've mentioned she has trouble turning her head to one side. When she's on her back we've worked enough that she is really good now about turning her head to either side. Somehow though, that doens't translate to the tummy. She hates being on her tummy in the first place and really hates having her head turned to the left on her tummy. In the last couple of days Aaron and I finally came up with the idea of making her take naps on her tummy after she falls asleep and turning her head to the left so she gets a good stretch. That's how we had to start out with turning her head to the left when she was on her back. So that is going pretty well. It is just discouraging because with all of her tightness issues it makes it really hard for her to lift her head. In fact she hasn't ever done it yet. When you put her on her tummy whether it's on a boppy pillow, your legs, straight on the floor, whatever, she bawls until her face turns purple and she starts choking. Not exactly a conducive attitude to trying to work on things.
So all this to say, if any of you have any suggestions about something I could do that would help her like tummy time even just a little bit, please, PLEASE let me know. All of your kids may have loved tummy time, but if they didn't I would love to hear what you did to help them. Also, please be praying for my patience and perseverence in working on this with her.
The consultation with the neurosurgeon is on Thursday morning and the second opinion ENT appt is on Friday. So keep us in your prayers for those two as well. I'm very nervous about the neurosurgeon thing so please pray for wisdom and peace, especially for me as we discuss what to do.
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