Skip to main content

Normal

Just a quick note to let everyone know that Maddy's labs from the endocrinologist came back normal. Thanks to everyone who prayed for her about this over the last month or so. Now please just keep praying that she will gain weight and that she will be the size she needs to be for her. So thankful for this good news this week as well as the news for Brandon and Amanda and kids.

Comments

Post a Comment

Popular posts from this blog

Getaway to Ticks Bend....I Mean Beavers Bend State Park

 Back in April, we decided we needed to do a short family getaway after the semester was over. The last time we'd been on vacation just to vacation (not going to see family in CO) was when we went to San Antonio when Maddy was 3 months old. We found Beavers Bend State Park close to Broken Bow, OK and decided to go there. We booked a cabin in the state park and eagerly awaited the day we could take off for our getaway. We left on Sunday afternoon and stayed through Tuesday afternoon. It was short, but so fun and relaxing. We had no computer and no cell phones while we were up there. We just got to enjoy being around each other and the beautiful scenery.  We built a fire and roasted some marshmallows. Also popped some jiffy pop. Aaron had never done one of those before.  This is a 100 year old cabin they had at the visitor center. I like the mud chinking ( I think that's what it's called). A couple named Comma and Mabel lived in the cabin when the CCC was building t...
4 comments
Read more

Geneticist

We went to see the genetic counselor this morning at 10. What we found out was hopeful for now, although we'll have to continue watching to see how thing develop. She said from what the doctors had communicated to her and from the initial results of the fish test (test for the chromosomal defects) and because I have been feeling the baby move every day, right now she thinks the baby may have a condition called Amyoplasia Congenita. This is a condition where the baby develops normally except for the hands and feet which can be corrected through orthopedic treatment, at least to some extent. People with this condition can live normal lives. This is obviously the best news we've had all week and much better than where we were a week ago. However, this isn't a diagnosis. We still need to watch the baby's development and also get the complete results from the chromosomal testing. BUT we are so thankful that today we have good news and something to hope for. For those (like m...
7 comments
Read more

We Need Your Prayers

Many of you have probably heard all ready, but Aaron and I got some devastating news today. Our baby will probably not survive outside the womb. They did an amneostasis this afternoon to test for chromasomal defects, which is what they think it is right now. I know I am spelling everything wrong so I hope what I write makes enough sense for everyone to understand what is going on. The specialist we went to see feels that it is triploidy or triamias 18. Those may not be the right names but they are two of the three chromasomal defects. The other is down's syndrome. He did not feel that it was down's. The other two defects are fatal so if we carry the baby to term it will not live but for a few days or hours if one of the defects above is the problem. We will know in 2days. If it is not one of those then we will have to go to a cardiologist and a genetic counselor. The baby had clubbed hands and feel and it's heart is not formed correctly and is not in the right place. Becau...
8 comments
Read more